September 25, 2010 – May 14, 2010
In September a close friend of mine gave birth to sweet Ryan. Sadly Ryan was born with congenital myotonic muscular dystrophy and PVL and on Friday after eight months of suffering he passed away. I was blessed enough to have met Ryan when he was just a day old in the NICU and last week i was able to say goodbye knowing that he was not long for this world.
On Saturday, those of us that loved him most will celebrate his short life as we lay him to rest. My thoughts are with his parents who are two of the strongest people i know. Their strength is awe inspiring. I wish them peace in knowing that Ryan is now free from pain.
We miss you already!